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Hi all I hope you are doing well

 

I am posting to ask for some assistance on behalf of an amazing Kenyan organisation, The Kilele Foundation Kenya, that is working hard to improve awareness on so many health issues to embetter peoples lives. Trying to work with sustainable solutions that help people best understand these issues. Their latest ambition is to bring Epilepsy awareness to Kenya, Alex has big dreams and a big heart.

This is his Foundation

http://www.kilelefoundationkenya.org/index.php

http://talkaboutitorg.ning.com/profile/KileleFoundationKenya

https://www.facebook.com/pages/Kilele-Foundation-Kenya/251762634869506

@kilelefoundatio (for all the twitter addicts out there, yes I am one)

 

We are literally talking about taking epilepsy awareness to many places where epilepsy is not known, in some areas, like the major cities there is an understanding of epilepsy, it is the rural areas where the need is the greatest. The first and most important thing to do is listen to what Alex and his foundation have to say about how epilepsy is perceived there so that we can better understand who we are helping. So that we do not let our lack of understanding the socio-cultural differences build a wall, instead of opening our minds and understanding, so that we can build a bridge to take epilepsy awareness across.

 

In rural areas, especially the remote areas of Kenya, there is little, or no easy access to doctors and nurses in the same way that we take for granted. So in many cases the medical profession have to go to these places with mobile clinks over people being able to go to see the local doctor, for there is no local doctor, just these mobile clinics doing the rounds. In these areas there are many places where there is no knowledge of epilepsy, and they have no word for the condition as they are not aware that this condition exists.

 

This is something that is going to be hard to address, as it is perceived to be something else, even of supernatural origins, or just normal for that family to have so they do not believe that medical assistance is needed. In places people suffering from epilepsy and their families end up getting shunned by those around them, leaving them with no support network to help them live with this condition and give them the assistance that is needed. Children who suffer from epilepsy so often have to drop out of school, as their condition leaves them to tired to be able to attend school, or worse, due to the stigmas forced out of school to keep them away from the other students.

 

Distance is another obstacle that needs to be over come, with communities being separated by vast distances, without the same transportation links that we take for granted. So spreading the message will take time and effort to reach out to those people who most desperately need it.

 

What they need is information, knowledge on epilepsy presented in such a way that it is easily translatable and understood. This information will be needed to be used for handouts, posters and informational pieces for TV and Radio, with the radio being one of the most common forms of receiving information over a wide area, internet availability is very limited. Like all African countries Kenya is a multilingual country, with the Bantu Swahilli language and English widely spoken as well as Lingua Franaca. According to Ethnologue, there are a total of 69 languages spoken in Kenya. This variety is a reflection of the country's diverse population that includes most major ethnic, racial and linguistic groups found in Africa. The two major language families spoken in Kenya are the Bantu and the Nilotic groups. For an overview of the languages of Kenya this article gives a good insight, into them and where they are commonly used: http://en.wikipedia.org/wiki/Languages_of_Kenya

 

The other main thing that will be needed is financial support to fund this venture, so that this information can be produced and that epilepsy ‘road shows’ can get underway bringing epilepsy awareness to those communities I have mentioned earlier in this post. Alex knows his people and has run successful health programs bring awareness of cancer, HIV/Aids and other health issues to the people, so with our help and his knowledge and experience working together with us he will be able to deliver a successful epilepsy awareness program alongside the others he runs. He wants to learn more about epilepsy so that he can share that knowledge with his people and bring epilepsy out of the shadows that are far darker than the shadows that cover it here and into the light and improve the quality of life for epileptics and their families, as well as providing a support network for them, which they have all ready started to provide.

 `

Thank you for taking the time to read this and for showing your support to Alex and The Kilele Foundation Kenya.

 

Alastair

Views: 174

Tags: africa, awareness, epilepsy, kenya, understanding

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Comment by Alastair Millen on May 3, 2012 at 2:52pm

you're welcome Alex and thank you for the work you are doing to shed light on this neurological condition, educating people about epilepsy, so that they will seek out medical assistance from doctors and break down the stigmas attached to it.

Comment by Epilepsy Awereness Kenya on May 3, 2012 at 2:33pm

Thank for this good post talking about all is happening in Kenya and some part of Africa, Join us and fight this Epilepsy in Africa where People dont understand Epilepsy is sickness and they need to see th DR . well com

Comment by Alastair Millen on May 3, 2012 at 6:23am

As I mentioned distance in this post, here is a good illustration on how big Africa actually is posted by Agnes Nyamayarwo on facebook, as you'll see it is a huge continent.
This is her Facebook page https://www.facebook.com/pages/AGNES-NYAMAYARWO/191970136067

 

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